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Hello :) I am a sixteen-year-old girl who has severe scoliosis. I don't know anyone personally who has this to talk to them about it, so that's why I am writing this post.
I am looking for anyone who is going through this, to talk about it and to offer help, advise and support.
This is only a brief overview so if you have any questions I am happy to answer them!
Scoliosis is a curvature o the spine, an S shape or C shape.
I was first diagnosed in September 2017 with mild scoliosis, I went to the doctors complaining about back pain and having one defined hip.
I was referred to the hospital in March 2018, during this time period my spine got so much worse now I am diagnosed with severe!
Like I have said this is only brief if you want to know more please let me know.
If you see a comment that is unsupportive or unfriendly, please report it using the flag button.
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I have mild scoliosis that was caught early and going to a chiropractor stopped it from worsening. I know have severe chronic pain, especially in my shoulders. My collar bones are super uneven and so are my hips.
My best friend has severe scoliosis. 80+° curve. She can't breathe properly and her stomach is being crushed. Having one another really helps. I was there for her when she started her therapy to try to lessen the curve. She does exercises twice a day for a hour. There's no way for her to have surgery, so she lives her life to the fullest and does makeup to express herself and partially distract people from her back.
Always stay positive is what we've learned. Even when the pain is unbearable, we stay happy and distract ourselves.
I hope that you find a way to get through the pain. Dream big and stay positive
ReplyGood on you step up your as strong as an oak tree
My grandfather you to say he had it his whole life
He was a rodeo speaker rode a horse
Became a radio dj owned a bar or 2 lived a full life
I never knew until I got older
He was married had 4 kids owned 3 houses
Was a big part of my life
Look for.groups alot of people are disabled I am but after what he showed me this is easy
Replyspeaking as someone who as been through scoliosis, my experience was much different, I don't know if telling you my story will help you but I guess I could try :) when I was 11 I complained for months to my mum about my chronic pain and she just thought they were growing pains and didn't take me to our local doctor until months after I started complaining. my mum took me to our doctors in the January and I had the operation in may, I cant remember what the degree of my spine was before my operation but my whole body didn't match with each other. I have a fond memory of being so happy that I had found what was wrong with me because nobody was listening to me complaining about my pain, which is so messed up looking back. I had the operation and it was successful fortunately for me, I was discharged 2 years after, and I was only in hospital for a week but I had to have a lot of time off school. I have also had 2 scar reconstruction surgeries since because my scar before made me feel physically sick if I looked at it. now 6 years on (ish) im 17 and I get no pain anymore as long as I stay active, ive found that if Im sitting in a chair for a long time I start to feel my rods, if that makes sense? oh and I still get people saying to me 'are you sure you can do that, yanno with your back' and I just feel like shouting at them ' the doctor has discharged me, you know this, I can do everything anyone normal can'. Apart from that I guess im one of the lucky ones who didn't have a brace because I would've hated that. good luck with your journey :)
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